Getting appointments!
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 I'm feeling a tad neglected I last had an appointment at my Pain Clinic in March - an infusion that didn't work and I can't even remember what the infusion was now. I phoned up earlier this month and the soonest I can get an appointment is November. Now I know it's not my specialist's fault 'cos he's had compassionate leave and holidays but... My GP decided I needed counselling or something in May and I saw someone to arrange what I needed. I was told a maximum of eight weeks waiting and it would probably be much sooner. I chased that appointment this month and I've been told that there are several people in front of me waiting for an appointment... Finally contacted the Occupational Therapists and their appointments are at least eight weeks away, probably much longer 'cos they are 'very busy at the moment'... The only one that is being sorted is for the ECG 24 hour test that I had earlier this month. I have an appointment for the results next Monday, which I think, going by the nurse's comments will probably (hopefully) show nothing. I suppose that I really ought to go back to my GP but I hate going. I'm actually wondering whether I'm suffering from SAD as I've felt OK these past few days but waking up and seeing the weather today the dark clouds matched my mood. I'm also wondering about asking my GP about a wheelchair but it feels like giving in... Sorry to be so whingy today
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Aw Scribbler, I'm sorry to read that you're going thru the NHS mill at the moment, it's a right royal pain in the nether regions isn't it? I've been waiting for an appointment since May and it's just getting nowhere too
 !! Big hugs to you  Sounds like you need some positive vibes, have you asked if you might be suffering a little depression? I know I felt like you once and now take a daily very low dose (10mg) antidepessant and it just seems to do the trick for me. I know the mornings are the worst time of day to be feeling 'down'. I am aiming to get to bed a bit earlier now the nights are drawing in so that I can get up earlier and make full use of the natural light, and then of course there's artificial lights to help you too. As far as the wheelchair is concerned, have you thought about a halfway step and using a rollator? They have them with seats and it's a very easy step to take - no pun intended!! Makes walking a whole lot more comfy and there's somewhere to put your handbag and park your bum!! I know you study but is there an exercise class you can do? I look at some oap's and feel envious of their energy!! Anyway, I hope you can find something to turn your into a  'cos that would be lovely!!!
Take care, Joo x   |
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It's the sheer effort of walking outside the home that knocks me - and the fact that I only get weekends to get out of the house. Hubby and I always used to be great walkers - the number of times I got 'shin-splints' when we visited anywhere and just walked and walked
 . I've hired wheelchairs just recently when we've visited places and I've enjoyed going out again, rather than avoided leaving the house. It's too easy to fall int that trap and almost slide back into agoraphobiac tendencies Guess I'm on another bit of a downer - not true depression - and I think it's all part of the grieving process of coming to terms with my disabilities. I've been tranx free since 1991 and it's one route I don't want to take which is why I opted for counselling. If I did drive I'm sure that I could do a lot more than stay at home most of the time, but I don't and nowadays I don't want to learn. I learn't to drive, but failed to pass my test about 20 years ago. Even getting to a 'gentle exercise' class is a taxi drive away. Ah well - onwards and upwards - and I love the   emoticons on here, I always enjoy using them . It feels, sort of, naughty
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You used a good word to describe the process. "Grieving" for the life that was is a painful process but when you come out the other side you are stronger for it.
If you think that you are being affected by the dark skies, invest in a light box. I have one(Jake has it at the moment as he suffers too,I'm on Prozac which helps he isn't) and it's an alternative to tablets which know you don't like. I also don't like giving in and I'm working on building up my stamina,today I walked into town and back again (20mins there and 20mins back, uphill on the return leg..lol) I had my dog for help .....I took her to the vet which is in the town centre. If I had to go in a chair to enjoy myself outdoors, I would. Just cos you use it doesn't mean that you have given up. It's merely a side step to recovery.  Sometimes the appropriate response to reality is to go insane.
- Philip K. Dick Sometimes my mind wanders, sometimes it leaves completely! |
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In reply to this post
by Scribbler
Hi again Scribbler, sorry, didn't realise you didn't drive and as I do, it's understandable you get frustrated with being indoors, me too! I had agoraphobia for about 8 months and so I understand those feelings of being afraid to go out, even to open the door or to even go up to the bin. I got thru mine because I was having awful panic attacks and found a charity called No Panic who helped with weekly (and daily sometimes) telephone help and group conference calls helping me to learn along with others dealing with the same and similar problems. I also got lots of help via the phone from fibro friends and some of them are on this site and without them, I couldn't have managed some days (thanks again guys
) Also the grieving process, it's a bugger isn't it? You think you're up to speed with yourself and bang! - you get all fretful and guilty again! I hope the site is helping in some small way? It's a good way to reach out, I know from experience, 'cos it's very easy to just curl up in a ball some days and shut out the world isn't it? The drugs - I had two awful bouts of coming off Paroxetine and vowed never to do so again but I know that this time, it was a concious decision to keep to the starter dose (of a different drug - Citalopram) and control 'it' rather than t'other way round! It's got me up and about again and I've been on them now, quite happily, for over 18 months. I was extremely scared to take anything else ever again but found a good gp who explained the pro's and con's many times until I was ready to take action for myself. I'm realising that it looks like I'm trying to persuade you to try the drugs approach but I'm not intending that, I just want to let you know that you're in a similar place to where I've been and the way I did things!! It was just right for me!! Is there a local free bus service that you could use to get out maybe once in a while with a wheelchair? There are some in Bristol so probably something where you live too? Just a thought Anyway, rambling on again  as per normal!! I hope today is an okay day Scribbler, hopefully the rain didn't get to your part of the country? And being naughty with emoticons - well, Scribbler, you little tinker!!  Joo x |
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In reply to this post
by Scribbler
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